11-12 June 2024
Location: Cornell University College of Veterinary Medicine – Ithaca, New York, USA
Host: Bronfenbrenner Center for Translational Research
Schedule
11 June 2024 (Day 1)
8.00 – 9.00
Registration and Breakfast
Atrium
9.00 – 9.15
Welcome and Introductions
Lecture Hall 4
9.15 – 10:15
Keynote Speaker: Johanne Morne
Lecture Hall 4
Johanne Morne
Executive Deputy Commissioner, Office of Health Equity and Human Rights for the New York State Department of Health
Johanne was appointed in August 2022 as a member of the New York State Department of Health’s Cabinet to lead the Department’s health equity and human rights planning, policy development and programming.
Johanne was previously with the AIDS Institute (AI) for 15 years, serving as director for six. The AI portfolio includes HIV and other sexually transmitted infection (STI) prevention and care, viral hepatitis prevention and treatment, drug user health and wellness, and LGBTQ+ health and human services. Johanne’s leadership has advanced the State’s Ending the AIDS Epidemic and Hepatitis C Elimination initiatives, and led to essential policy changes to promote expanded access to HIV, STI and Hepatitis C prevention, treatment, and care, as well as furthering statewide harm reduction programming and LGBTQ+ service delivery.
10.15 – 10.45
Table Discussions
Atrium
10.45 – 11.15
Break – Translational Research Bingo
Atrium
11.15 – 12.30
Parallel Sessions
Every Step You Take: Creating Research Products with the Public
Oral Presentations
Lecture Hall 4
Co-producing a story book for children who experience parental substance use: ‘Twinkle, Twinkle Arti’ By: Cassey Muir
Engaging Citizen Partners within a Rapid Review Process By: Emily Clark, Robyn Traynor, Susan Snelling, Maureen Dobbins, Farnaz Azarmju
Co-designing a Mobile Application with Immigrant Adolescents for better Sexual and Reproductive Health By: Salima Meherali, Saba Nisa
Better Questions + Better Methods = Better Research
Oral Presentations
Lecture Hall 5
Advancing Inclusive Public Health Monitoring: The Case of the Dutch Youth Monitor By: Mariëlle Cloin, Lisa van den Brekel
Round ‘Ere: Engaging the public on designing community wellbeing data hubs By: Emily Rempel, Gianfranco Polizzi, Simeon Yates, Emma Lord
Relational Systems Evaluation for Public Health Programs By: Jennifer Urban, Jane Buckley, Monica Hargraves
Teamwork: Public Proponents for Research and Education
Gallery Spaces
Location TBD
The Voices of Stakeholders Within Free School Meal (FSM) Research By: Connie Dalton, Dr. Pamela L Graham, Dr. Richard Lee
Transitioning Power: Health Education as a Conduit Toward Health Equity By: William Chambers, Rhiannon John
Public Health Ambassadors: public engagement in practice during the COVID-19 pandemic and beyond By: Shannon Alvord, Samantha Hillson
Can we Create Moral Economy of Knowledge Co-Creation?
Fishbowl
Classroom 6
Public health research as an extractive industry: towards a moral economy of knowledge co-creation By: Lisa Garnham, Cat Tabbner
12.30 – 13.30
Lunch
Atrium
13.30 – 14.30
Keynote Speaker: Jeremy Taylor
Lecture Hall 4
Jeremy Taylor, OBE
Director for Public Voice, National Institute for Health and Care Research (NIHR)
Jeremy Taylor is a leader and expert in patient voice. Since 2020, he has led and strengthened NIHR’s work on public engagement and the dissemination of research evidence.
From 2009 to 2019 Jeremy was chief executive of National Voices, the national patient advocacy charity. It grew in stature from a start-up under his leadership and he was awarded the OBE in recognition of this work. He is also a former senior Treasury official.
Jeremy is co-author of “Organising Care Around Patients” published by Manchester University Press in 2021 and a chapter author of Research Handbook on Leadership in Healthcare published by Edward Elgar in September 2023.
14.30 – 15.45
Parallel Sessions
Experience Matters: Policy-Makers and Practitioners as Partners
Oral Presentations
Lecture Hall 5
Leveraging partnerships with practitioners and policy makers to support action-oriented public health research in homeless populations By: Sheena Ramsay, Emma Adams, Neha Jain
“I can see my life in that diagram”: reflections on the challenge and necessity of bringing lived experience insights into systems science and policy modelling By: Lisa Garnham, Ellen Stewart, Kat Smith
Setting up a national learning community for Public Health professionals. And how to involve the public? By: Tamara van Waardenburg
Interactive Poster Session
Posters
Atrium
Flourishing at the frontlines of healthcare delivery: Strengthening character virtues among frontline health workers delivering care to underserved communities in Sindh, Pakistan By: Danya Arif Siddiqi, Manaksha Memon, Muhammad Owais Siddiqui, Mubarak Taighoon Shah, Monica Hargraves, Jennifer Urban, Subhash Chandir
Attitudes Towards Telehealth Among Rural Georgians By: Tyler Collette, Akanksha Manna
Reducing loneliness through culturally appropriate, faith-based activities in older Chinese and South Asian communities By: Zeb Sattar, L. Geddes, S. Ahmed, L. Lochhead, S. M.Carr
Life-Space Mobility: Unraveling the Impact of Osteoarthritis on Mobility Patterns among Older Immigrant Women in Canada By: Saba Nisa, Jordana Salma
Real Experiences of Youth Voice in Policy
Fishbowl
Classroom 6
Youth Voice in Policy-Making: Real-World Experiences By: Eric Zasada, Michelle McCarthy
15.45 – 16.00
Break
16.00 – 17.00
Plenary Panel: Seldom Heard Voices in Public Health
Location TBD
17.00 – 18.30
Open Time or Walking Tour of Cornell Campus
18.30 – 20.00
Dinner
Cornell Human Ecology Commons, Level T, Martha Van Rensselaer Hall
12 June 2024 (Day 2)
8.00 – 9.30
Breakfast
Atrium
9.00 – 9.30
Table Discussion
Atrium
9.30 – 11.45
Parallel Sessions
Better Together: Including Diverse Co-Researchers
Oral Presentations
Lecture Hall 4
Engaging Peers in Public Health Research: Evaluation of Whole Systems Approach in the Management of Child Healthy Weight By: Murali Krishnan Perumbakkam Subramanian
Creating supportive spaces and inclusive opportunities for co-producing research with people experiencing homelessness and other forms of disadvantage By: Emma Adams, Sheena Ramsay, Neha Jain
How can we include infant voice in public health through ARTS (sAy fRom The Start)? By: Bronia Arnott, Arwa Katab, Ben Dickenson, Ian Robson
I’ve Got to Make Sure That I’m Emotionally Well as Well: Use of I-Poems as a Reflective Device in a Peer Research Project on Men’s Health By: Shelina Visram, Mabel Lie, Richie Andrew, Neil Carter, Jonathan Lee, Matthew Williams
The promise of community co-researchers in increasing public health research inclusivity and decreasing population health inequalities: What do we know from a PHIRST-Fusion, CHIL Consortia, and Blackpool HDRC collaborative project By: Bronia Arnott, Stacey Walker, Nai Rui Chng, Sandra Bee, Riley Bunce, Sharon Hird, Matthew Parker, Peter Craig, Hannah Maiden
Interactive Poster Session
Posters
Atrium
Cultivating Collaborative Engagement: A Journey towards Enhanced Public Involvement in UK Public Health Research with Fuse, the Centre for Translational Research By: Laura Ritson, Susan Carr, Ella Anderson
Vaccination Conversations with Scientists: Compassionate, science-backed conversations improve community perception of COVID-19 vaccinations By: Kara Rode-Webber, Flavia Scott, Sonia Parmar, Alyssa W. Kaganer, Itunu Adejare, Christian Bertomo, Aljay Carnate, Alexa Cohn, Elaine Geng, John He, Daniel Kim, Scarlett Lee, Corinna Loeckenhoff, Grace Marshall, Tej Shah, Rachael Skye, Angelina Tang, Arian Thakurdyal, Brian Wang, Cassandra Wattenburger, and Kara Fikrig
Communities in the lead- Implementing local health policies involving neighbourhood residents By: Ien van de Goor, John Dierx
ASCD Healthy School Communities Project: Engaging Stakeholders for Capacity Building and Sustainability By: Robert Valois, Sandra K. Kammermann
Conversing with the public – exploring public health writing among Swedish professionals By: Robert Larsson, Maria Norfjord, Jennifer Beard
Cultivating Reciprocations of Care through a Critical Conversation Space Curriculum By: Gabrielle Kubi, Haley Montgomery, Eden G. Harrison, Mara Johnson
Strategies for Engaging African Communities in Public Health By: Kingsley Chigbu, Florence Ugochi Chigbu
About that Data: Gathering, Evaluating, and Insight
Gallery Spaces
Location: TBD
User-Centered Approaches to Engage Parents in the Design of a Digital Health Intervention By: Shariwa Oke, Laura L. Bellows, Sondraw Eby Eisenstat, Ligia I. Reyes, Beatriz A. Carmona
Evaluating Public Health Programs Using Theories of Change By: Jane Buckley, Jennifer Urban
Prioritizing quality public and community level evidence in decision making: The Quality Assessment of Community Evidence (QACE) Tools By: Emily Clark, Susan Snelling, Maureen Dobbins
Test to Protect (T2P): Empowering the Public in the Battle Against COVID By: Barbara Goodall, Amy Grant
Researchers as Mandated Reporters
Fishbowl
Classroom 6
Research and Evaluation with Youth: Researchers as Mandated Reporters By: Vicki Baum
11.45 – 12.45
Lunch
Atrium
12.45 – 13.45
Keynote Speaker: Subhash Chandir
Lecture Hall 4
Dr. Subhash Chandir, Ph.D., MBBS, MPH, CPH
Founding director, IRD Global
Dr. Subhash Chandir is a founding director of IRD Global. He earned his medical degree from Pakistan and pursued a Masters in Public Health (Infectious Diseases) and a doctorate in Global Disease Epidemiology and Control from Johns Hopkins University.
Over the past two decades, Dr. Chandir has conducted or participated in various studies and projects in Pakistan, Bangladesh, Indonesia, Kenya, Nigeria, Peru, Ecuador, the United Arab Emirates, and the US. His research and teaching efforts have been focused on several critical areas, including infectious disease epidemiology, surveillance, immunizations, women and child health, economic incentives, capacity building of frontline health workers, digital health, and operational research.
Dr. Chandir serves on the faculty at Johns Hopkins Bloomberg School of Public Health, and is a member of the World Health Organization’s Digital Health Technical Advisory Group.
13.45 – 15.25
Parallel Sessions
Innovative Interventions
Oral Presentations
Lecture Hall 5
Creative Play on Prescription for Parents: A Pilot Intervention around Birth Trauma, Postnatal Depression and Reflective Function By: Paige Davis
Nature Counts By: Barry Tolchard, Esther Smith
Lessons Learned from Involving Citizens in the Development of a Local Health and Wellbeing Strategy By: Shelina Visram, Mabel Lie, Mandy Cheetham, Philip Hodgeson, Anna Christie, Meg Logan, Joseph Jasperse
Using a participatory approach to addressing barriers to early diagnosis of prostate cancer among Black men in the North-East of England and Scotland By: Floor Christie-de Jong, Olugbenga Samuel Oyeniyi, Lawrence Nnyanzi, Judith Eberhardt, John Kabuye, Martin Kalemba, Marie Kotzur, Kathryn A. Robb
Interactive Poster Session
Posters
Atrium
Engaging Adolescents in Sexual and Reproductive Health and Rights and Family Planning Advocacy in Pakistan By: Salima Meherali, Zohra Lassi
Public Partners Take the Mic: Fuse’s “Research and Me” Podcast and its Promise for Public Engagement By: Mark Welford
Engaging Kinship Caregivers in Advocating for School-Based Dental Services By: Nancy Mendoza, Angela Tovar
Fulfilling potential and keeping commitments: Exploring the “promises” for public involvement and engagement in the National Institute for Health and Care Research (NIHR) School for Public Health Research (SPHR) in England, UK By: Lesley Haley, Margaret Ogden
All our children. A pragmatic case study exploring the impact of a significant other, place or thing on young people’s development using the Capability Approach and the Person, Process, Context and Time Model By: Sasha Ban
Cabaret of Dangerous Ideas
Location: TBD
The Promise of Engaging Youth in Public Health and the Impact of Adultism By: Heather Wynkoop Beach, Marisol De Leon
Patient and Public Involvement and Engagement in research – Do we need an ‘ethical anchor’? By: Sophie Suri, Samantha Harrison, Alex Belvin-Nicholls, Felicity Shenton
Can we do that here?”: Context-Awareness in Dissemination and Implementation of Public Health Programs By: Jennifer Urban, Jane Buckley, Monica Hargraves
Engaging the Public: Successes and Failures
Fishbowl
Classroom 6
Engaging the public in public health: What does it mean for our research? Reflecting on successes and failures from Tranzo and Fuse By: Ien van de Goor, Peter van der Graaf
15.25 – 15.45
Break
15.45 – 16.45
Plenary Panel: History and Future of Fuse
16.45 – 17.30
Planning for the next Fuse Conference
17.30
Conference Ends
Session Descriptions
Co-producing a story book for children who experience parental substance use: ‘Twinkle, Twinkle Arti’ By: Cassey Muir
This presentation will focus on the co-production of a story book that aims to support the emotional and social wellbeing of children whose parents use alcohol and/or drugs. We have collaboratively worked with children, parents, teachers, practitioners, an author, illustrator, and film club to develop a story book and story time video. The book translates findings from two linked studies and is a tool to facilitate conversations between trusted adults and children. The presentation will cover: 1) details on how and why the book was developed; 2) a showcase of the finished book/video and the themes presented within it (with a limited number of copies to share with interested colleagues); and 3)feedback on usability and impact.
Engaging Citizen Partners within a Rapid Review Process By: Emily Clark, Robyn Traynor, Susan Snelling, Maureen Dobbins, Farnaz Azarmju
To make rapid reviews more responsive and relevant to priority issues, the National Collaborating Centre for Methods and Tools’ (NCCMT) Rapid Evidence Service (RES) meaningfully engages citizen partners with lived experience in the development of rapid reviews on various public health topics. The NCCMT’s RES has successfully engaged 21 public partners across 19 rapid reviews, bringing unique insights and perspectives that enhance the relevance of the reviews. This session will explore formally incorporating public engagement in the rapid review process to address a major gap in the evidence synthesis and decision-making process.
Co-designing a Mobile Application with Immigrant Adolescents for better sexual and Reproductive Health By: Salima Meherali, Saba Nish
In my presentation, I will share how we can actively engage end-users, such as adolescents, in designing and developing knowledge translation interventions or strategies. Co-designing and tailoring KT interventions according to young people’s needs, preferences, and context will ultimately lead to more impactful utilization of health information and in healthcare decision-making.
Advancing Inclusive Public Health Monitoring: The Case of the Dutch Youth Monitor By: Mariëlle Cloin, Lisa van den Brekel
Public health monitoring is essential for understanding societal trends, but inclusivity challenges exist. This is also the case in the Dutch youth health monitor, which only surveys mainstream secondary school students, excluding those in special or practical education. Our project aims to improve the inclusivity of the youth health monitor, focusing on the 2021 monitor (n=166,252) to study COVID-19’s impact on young people’s health. The goal is to incorporate diverse stakeholders, including students and parents, input throughout the monitoring process.
Round ‘Ere: Engaging the public on designing community wellbeing data hubs By: Emily Rempe, Gianfranco Polizzi, Simeon Yates & Emma Lord
Data used to track community health and wellbeing are often top-down measures focused on ill health. We present an evaluation of a peer research and public engagement method to build bottom-up community wellbeing data hubs. Using appreciative inquiry we look at how to support a community to ask itself how to measure wellbeing.
Relational Systems Evaluation for Public Health Programs By: Jennifer Urban, Jane Buckley, Monica Hargraves
Relational Systems Evaluation (RSE) is an empirically tested framework for program evaluation and planning that integrates principles associated with systems theories in order to develop evaluation capacity, enhance evaluation quality, integrate research and practice, and ultimately improve programs. RSE provides a practical way to bridge theory and practice in evaluation by working through evaluator-practitioner partnerships to integrate diverse sources of expertise and build evaluation capacity. RSE is operationalized using the Systems Evaluation Protocol (SEP), a step-by-step protocol for planning, implementing and utilizing an evaluation of programs or interventions. The talk will describe the structured process for working with programs on evaluation planning using the SEP and the Netway, a publicly available online evaluation tool.
Relational Systems Evaluation for Public Health Programs By: Jennifer Urban, Jane Buckley, Monica Hargraves
Relational Systems Evaluation (RSE) is an empirically tested framework for program evaluation and planning that integrates principles associated with systems theories in order to develop evaluation capacity, enhance evaluation quality, integrate research and practice, and ultimately improve programs. RSE provides a practical way to bridge theory and practice in evaluation by working through evaluator-practitioner partnerships to integrate diverse sources of expertise and build evaluation capacity. RSE is operationalized using the Systems Evaluation Protocol (SEP), a step-by-step protocol for planning, implementing and utilizing an evaluation of programs or interventions. The talk will describe the structured process for working with programs on evaluation planning using the SEP and the Netway, a publicly available online evaluation tool.
The Voices of Stakeholders Within Free School Meal (FSM) Research By: Connie Dalton, Dr. Pamela L Graham, & Dr. Richard Lee
Free School Meals (FSM) have been a longstanding feature of the educational landscape of the UK as an intervention to address malnourishment, they are available to school aged children who come from households which meet a varied list of criteria. However, research has shown that children are less likely to be invited to participate in research into FSM. Children, parents and school staff from across the UK were invited to participate in a research project on FSM utilising photovoice, interviews and focus groups to share their experiences on the FSM system. This gallery space will mainly look at the potential of involving children and young people in research on public health, focusing on FSM from a human rights based perspective, in line with the United Nations Convention on the Rights of the Child’s Article 12.
Transitioning Power: Health Education as a Conduit Toward Health Equity By: William Chambers, Rhiannon John
This presentation will highlight the role of health education as an innovative method of engaging the public in public health. Providing diverse populations with health education helps individuals make informed decisions regarding their healthcare and equips them with the necessary tools to relay that education to others. To this end, our presentation will explore practical ways to use health education as an engagement tool for any population being served—utilizing the multifaceted experiences and expertise of current sexual health educators.
Public Health Ambassadors: public engagement in practice during the COVID-19 pandemic and beyond By: Shannon Alvord, Samantha Hillson
With the launch of COVID-19 vaccination efforts in 2021, the Tompkins County Health Department took a unique approach to promote vaccination among hesitant groups. Hiring individuals from within target populations, our Public Health Ambassadors (PHA) took public health directly into the community, to be physically present and visible. The success of our PHA pilot allowed us launch a Community Health Worker program, an initiative rooted in building self-advocacy and agency among those most impacted by structural and systemic issues that contribute to health disparities and negative health outcomes.
Public health research as an extractive industry: towards a moral economy of knowledge co-creation By: Lisa Garnham, Cat Tabbner
We face a number of obstacles in moving towards non-extractive research praxis in our work on poverty and public health in Glasgow, Scotland. Others, in other settings, are experiencing the same. Challenges have primarily stemmed from the demands of research institutions on us and our collaborators. We wonder: can we create a ‘moral economy’ of knowledge co-creation within this system? How?
Leveraging partnerships with practitioners and policy makers to support action-oriented public health research in homeless populations By: Sheena Ramsay, Emma Adams, Neha Jain
In this presentation, we will present case studies of research projects where policy makers and practitioners have been involved resulting in actionable findings. The case studies are based on research projects providing different examples and reflections on engaging with relevant stakeholders, and how that shaped and informed our research. The research projects were related to the health of populations experiencing homelessness, and related disadvantages. Learnings shared in this presentation would be applicable to public health and inequalities research, more widely.
“I can see my life in that diagram”: reflections on the challenge and necessity of bringing lived experience insights into systems science and policy modelling By: Lisa Garnham, Ellen Stewart, Kat Smith
We present an innovative attempt to use systems maps to combine evidence synthesis with lived experience narratives about the housing-health system. We reflect on the crucial insights offered by lived experience contributions and what this reveals about the limitations of the ‘evidence cultures’ currently dominating health research and policy work in the UK.
Setting up a national learning community for Public Health professionals. And how to involve the public? By: Tamara van Waardenburg
In the Netherlands, municipalities, health insurers and the Dutch Ministry of Health, Welfare and Sport are jointly committed to healthy and active living (Healthy and Active Living Agreement) and to appropriate care (Integral Care Agreement). Both agreements pursue an integrated and cross-domain policy to achieve these goals, consisting of the implementation of preventive approaches at local level. To optimally advise local governments, public health (PH) professionals need knowledge and skills on how to implement cross-domain preventive approaches successfully. Therefore, a learning community for PH professionals is initiated in 2023 on a national level, financed by the Dutch Ministry of Health, Welfare and Sport. During this presentation I will explain how we set up the learning community and how we try to involve the public.
Flourishing at the frontlines of healthcare delivery: Strengthening character virtues among frontline health workers delivering care to underserved communities in Sindh, Pakistan By: Danya Arif Siddiqi
Our work addresses the challenges faced by Frontline Health Workers (FHWs) in Low Middle-Income Countries (LMICs), particularly in Pakistan, focusing on issues such as burnout, training gaps, and safety concerns. We propose an innovative solution—a tailored humanities-based curriculum leveraging local arts and literature to reconnect FHWs with their sense of purpose, fostering empathy and improving patient care. We present findings from our study that employs a multi-phase mixed-methods approach, to evaluate the feasibility and impact of the humanities-based curriculum piloted with 100 vaccinators and lady health workers and evaluated using an adapted purpose scale and in depth interviews with participants. We will share lessons learned from the study and present policy implications of our work.
Attitudes Towards Telehealth Among Rural Georgians By: Tyler Collette, Akanksha Manna
In rural Georgia, many residents face chronic health issues and a lack of local healthcare providers. Telehealth services are a solution to this major access gap. This study examines attitudes toward telehealth usage in rural Georgia to explore factors for engagement. The analysis revealed that prior telehealth experience influenced current positive attitudes.
Reducing loneliness through culturally appropriate, faith-based activities in older Chinese and South Asian communities By: Zeb Sattar, L. Geddes, S. Ahmed, L. Lochhead, & S. M. Carr
Minority ethnic older South Asian (SA) people suffer persistent health inequalities. Addressing cultural barriers to access health and social care services should therefore be a public health priority. Experiences of older SA people engaging in culturally appropriate social activities and one-to-one support services were explored to understand how they reduce loneliness and social isolation. A three-year mixed methods evaluation study (2021-2024) was conducted in a Northern part of England.
Life-Space Mobility: Unraveling the Impact of Osteoarthritis on Mobility Patterns among Older Immigrant Women in Canada By: Saba Nisa, Jordana Salma
Introduction: Osteoarthritis primarily affects the hips and knees, leading to pain and stiffness, and reducing the quality of life among the aging population worldwide. This study aims to understand the experiences of these women, particularly exploring the impact of osteoarthritis on their life-space mobility.
Methodology: For this study, purposive and snowball sampling was used. For data collection, a combination of walk-along interviews and home-based interviews were completed. Thematic analysis helped explore patterns and themes within participants’ responses.
Results: This study reveals the significant challenges faced by older South Asian immigrant women with osteoarthritis. The findings highlight their struggles with physical limitations, including pain, restricted mobility, and stiffness. Participants’ beliefs around health management underscore diverse perspectives on diet, traditional remedies, exercise, reluctance toward medical interventions, and perceptions of surgical options. The study also illuminates the broader impact of osteoarthritis on daily life, influencing household activities, religious practices, and social interactions. Furthermore, participants highlighted challenges such as lack of health literacy, making it difficult for individuals to navigate their health effectively. Additionally, participants encountered prolonged wait times for medical assistance, contributing to delays in addressing their health concerns. The burden of high medical costs further compounded their challenges, creating barriers to accessing necessary healthcare services.
Conclusion: Our study findings align with the conference theme by shedding light on health disparities within immigrant populations, emphasizing the need for tailored healthcare interventions, and advocating for the active engagement of the public in shaping health policies. The insights from our study aim to empower healthcare professionals, policymakers, and the public to collectively address the
Questions?
Email us at fuseconference@cornell.edu